Sometimes I need a friend whose shoulder provides comfort. Being a mother to Anna means that I have these wonderful friends but they aren’t HERE, sitting next to me. The reality is that when you have a child as complicated as Anna, real life friends are few and far in between. I do have a…
Tag Archives: behavior
For those of you who don’t follow me on Facebook, Anna started coughing Wednesday coupled with a little vomiting. On the way to school yesterday, she coughed a big cough and threw up just a little bit, so I kept her home for about an hour then took her to school late since she seemed…
A quick update to say that I think the Klonopin is helping Anna a little. She is not perseverating as much and she has not attempted to leave the house this weekend without permission. She only tried to leave school a couple of times Thursday and Friday instead of constantly. We still have a long…
So glad to hear the meds are helping! Hang in there hun!
That's wonderful!!
I am overwhelmed. I talked with Anna’s class this morning while she was out of the room. Her teacher offered me a chance to do it or the school counselor could’ve come in, but we thought I might offer a more personal touch. I was really nervous and not quite sure which approach I should…
Holly – just letting you know I'm thinking of you. It sounds like the talk with the class went well. ((hugs))
Holly – know that your Dad loves you ! I wish that I had more to offer than that. I wish I could be there to help somehow. I am here if you need to talk.
I think that you're absolutely amazing.
Dominic has his OT evaluation this morning and what a suprise! It looks like he has proprioceptive issues caused by sensory integration dysfunction. I would never have guessed. Anna has very intense sensory issues but they are the opposite of what Dominic has. Dominic needs to move his body constantly to know where his body…
Oh, Holly, your Dominic sounds a lot like my Braden. he was diagnosed with SPD (SID) when he was 2, and we've been doing therapy every other week for the past 2 years. He's just now getting caught up on fine motor skills.
I am so sorry Anna is giving you so much trouble, but love how involved you are with her schooling. I also appreciate that you are thinking of everyone else in the room also. I have a student who is ODD and ADHD and his guardian is trying not to give him his meds, and it totally disrupts the entire class room keeping EVERYONE from learning. The sad thing, his guardian is the school secretary at one of the other schools in my district . . . she should know better.
((((big hugs)))), it can only get better, no? 
Carol Askew - Your journey mirrors mine with Megan so much. I'm so glad we found each other, have each other. I don't tell you, and our other exceptional women friends, enough how much you mean to me. But, yea, I wish I lived around the corner from you! ((hugs))
~Holly - I'm so glad we found each other too, Carol. I would give anything to be with your IRL.
UhManDuh - Holly, This blog was like….MEANT for me I think. Summer is having some developmental delays & her doctors are looking more into if she could have this or that. I'm worried. I LOVE my daughter without rhyme or reason. She will FOREVER be my daughter but I'm scared. I mean….scared. I dunno what to do. I'm hoping her ped is just being overly protective (we have SUCH a wonderful ped) but I also wonder…Thank you for shining a lot of what a lot of ppl think is a "bad" thing or "defect"…
~Holly - (((Amanda))) I am so so sorry that Summer is having some delays. It's a really hard thing to not know what is wrong and if she's going to catch up. Seek out support. It is so important. I love you, sweetie, and I'm here for you!
Mom to Maddie - Holly,
Oh boy does this hit home for me. It was 6 years ago we joined the Hypotonia group… I always wonder where the six years have gone…. I met some amazing people and developed some amazing friendships.. My support group who "gets" me are all on the internet too. Unfortunately I have never met any of them and some friendships I have lost. My dearest friend abandoned me for some reason and would not explain. I have spent a year trying to figure it out and never did come to a resolution. In recent months, I have wondered "how" a person that I have never met could hurt me so much?? And yet, here I am a year later and never moved on.. I have called myself pathetic so many times. I guess, it was the one person I connected with for 5 years…and that's a long time. But I too wish there were still someone "around the corner". Since we received a diagnosis, I have found a new set of friends..but I am fearful of connecting too deeply for fear of getting hurt again. But you are right..I don't think there's ever a full acceptance… it was only tonight that I was driving in my car thinking about what one of my other "friends" had posted and I started to cry…it just hurts that the life you plan to have for your child is so different than what it should be…so many tests, appointments, etc…
So hugs to you my dear friend xxxx
~Holly - (((Ash))) I'm so sorry you have lost a dear friend for an unknown reason. I can't imagine the pain and confusion that brings you. This journey is so hard and opening yourself up to others and letting them into your heart, your soul and all those fears… it must be very devastating to have someone turn away. Don't build your wall so tall that no one else can get in. You aren't alone.