Early in spring, Anna had a checkup with the pediatric geneticist. At that time, she noted some kyphoscoliosis in Anna that she wanted checked out by an orthopedic doctor. It was a six-month wait to get into the Specialty Care Center at Dell Children’s Medical Center and today was our appointment. They said to expect…
Tag Archives: behavior
So the kids are in their third week of school and both Anna and Dominic have had their ups and downs. Anna is adjusting to her inclusion class better than I hoped but she’s already had several incidents with throwing things, yelling “idiot girl” (her favorite angry phrase), pinching another student, and hitting the teacher….
Holly – you are doing an incredible job, in an incredible challenging situation! It's just not fair that you must think so much, and work so hard, when so many parents just get to skate through. I know you are up to it though. Your kids are so blessed to have you. You have lots of people behind you, wishing you, and your beautiful children, well. You can do this!! Give your wonderful kids hugs from me.
An Open Letter to all Neighbors, Everywhere Dear Neighbor, Perhaps you’ve seen us in passing.. the “special” family on your street. You’ve seen me struggling with my special needs child, you’ve seen her run away from me, you’ve seen her yelling at me or hitting me, and you’ve thought to yourself, “I don’t know how…
Oh Holly this entry had me in TEARS! I SO know what you're going through. We go through it everyday with Avery also. Should he be outside playing I have to be right there because he's left out, run away from, etc. Even by his brothers!! When they're out with friends they also exclude him. And it kills me inside.
*big hugs* I hope you don't mind if I share this entry.
Oh Holly…HUGE HUGS. We have yet to run into this with Sophie being so young…but I know our day will come. It breaks my heart for you right now though. I wish we lived closer to one another. I would absolutely LOVE to have Anna over to play dollies with Sophie and Dominic to play cars and trucks with Maxie.
Again…THANK YOU for being so honest and letting your true feelings out. It helps others more than you can ever fathom.
Kelly
Heather, yes… of course, you can share this. I would be honored. I'm sorry that Avery's brothers exclude him sometimes, that would be very painful.
Kelly, thank you for that note. I feel such a connection with you and I so appreciate your kind comments. I wish we could play together too.
Holly, this was the best journal entry I think i've read in a very very long time. It was so honest and heartfelt. It really pulled on my heartstrings. I wish I lived near you so I could set up some playtime with Anna and Riley. Anna is such a beautiful and sweet little girl and it breaks my heart that people don't understand a little better. I'm so sorry that not only Anna and Dominic's feelings get hurt constantly but yours too. I can't even imagine how it makes you feel. (((((Hugs)))))
We are going through this w/Gabriel too..he now longs for friendships and playmates, but has "limited" play skills. Wish Anna lived nearby, so they could be buddies. Great Entry Holly!
I could have written this….well if I had your talent for writing, but I know exactly how you feel. You have really touched my heart!
thank you
Anna is in a bit of a bratty stage. I’m happy to see this typical behavior and I understand it, even though it’s a few years later than average. But when she acts out, these behaviors are more intense because of her age and size. And she doesn’t understand consequences the same way my other…
Holly – this form of discipline sounds completely normal. I hope that it is one that Anna can grasp and the thoughts of behavior 'consequences' helps her with control issues. Love, Dad
I know it was hard to do. This is the EXACT thing we do in our house. Sophie went through a TERRIBLE hitting stage. Each time she hit, we removed one of her beloved toys from her room and placed it on the fridge. That particular toy had to stay there until she had 3 hit free days. It was TORTURE at first…because she whined and cried and had tantrums about it. BUT, it WORKED. She hasn't hit in MONTHS. She used to hit ANY TIME she was frustrated with something. She really caught onto the concept (which for her is amazing) of hit=lose toy. We are now implementing this same thing for Max, although he is having a harder time grasping it, and I am thinking he may be too young just yet. I hope this technique works well for Anna. BTW, I went through Maxie's baby clothes and realized the diaper box I was going to mail them in is way to small. As soon as I find a larger box they will be on their way.
I feel like I have poison in my blood. At the end of such a long day with such a crappy ending, I have this intense dislike of my daughter’s chemical imbalance in her brain and subsequent feeling that I intensely dislike her. Which of course, I don’t. But it’s hard to tease apart the…
O Holly my heart aches for you! I will keep you in my thoughts.
Holly this brought tears. I am feeling so much of what you are going through right now. Sophie is impossible about 85% of the day right now. She has me so exhausted that 1/2 the time I don't know what to do. I keep feeling like I am failing her somehow because of her behavior. She can have such good moments…but then turn on us. The frustration level is through the roof right now. She BEGS to go bye bye…but then 10 minutes after we are out she is begging to go home. We tried to go to JcPenney on Saturday, and I am not sure what set her off…but she was NOT having it. Then a salesperson stepped in and said something about her crying and why would such a pretty little girl be throwing such a tantru. I almost snapped. Not at Sophie…but the lady.
And like you…I KNOW Sophie can't help herself. I KNOW she doesn't do this on purpose. AND I keep reminding myself when I feel that I am about to be too harsh with her, that I am her world. I am the one she turns to for everything (not that she doesn't turn to Kenny, but she won't let him do most things for her…has to be me). I am her soft place, her comfort. I love her so much it can be painful.
You and Anna are such an inspiration for me. I love that you are so honest here…and that you allow me into your life so that I can learn more about parenting Sophie…and most importantly feel not quite so alone while doing so.
Once again I feel we are living parallel lives.
I love Connor with all of my heart but there are times. He has been having almost daily crying jags. These go on for about 30 minutes. There is no comforting him when this happens. I feel my patience and lack of sympathy start. It just get old very fast.
Then there is the regression to smearing his bms again. I can't leave him alone in his room. I have to watch him like a 2 year old.
He challenges me everyday as well. Then he comes to me with his huge smile and wants to be hugged and tickled. Then he will latch on and want to be carried.
So hang in there my sister. xoxoxoxo
Heather C - Ugh, how frustrating! I hate late doctors and I hate when they don't even apologize for it. So rude! Despite the long appointment, it sounds like Anna rolled with it like a champ.
Drew has mild scoliosis too and sustained clonus. Everyone has clonus in their ankles but it is only if it contracts more than a certain number of times that it is abnormal. At least I think that is how it works.