Category Archives: Elusive Tranquility

Elusive Tranquility is my personal blog about parenting a special needs child and her siblings. I started this blog many years ago as a way to share my parenting stories and to connect with other parents of special needs children. I have three children, Jenny who is in college, and Anna and Dominic, both in elementary school. After having Anna, the way I view the world shifted. Anna has PDD-NOS (a form of autism), intellectual disability, epilepsy, microcephaly, hypotonia, hypothyroidism, kyphoscoliosis, sensory integration dysfunction, hearing loss, high myopia, mood disorder, and was failure to thrive from 6 months to 3 years. Bless her heart, her life is hard but she never complains. My son, Dominic, also has ADHD and is intellectually gifted. Anna experiences life at a different pace and with a different viewpoint, and has challenged everything I know about motherhood. Having always been very empathic myself, I feel what she feels and see what she sees… and this gives me a unique vision when exploring my artistic side. I have connected with many other special needs parents through this blog and love hearing from you.

365 in 52 [2013] ~ Week Seventeen

Well… as good as last week was, this week wasn’t so hot. Anna was suspended from school on Thursday for an incident that happened on Wednesday. I debated on whether or not to share the details, but decided that Anna deserves to have people understand her behavior… and if you see someone agitated and acting…

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pam - Why did the school stop using her BIP? Does the BIP state different levels of consequences? Does it state what they will do if she get’s physically aggressive? I had an autistic girl a couple of years ago, who would have these meltdowns around her cycle too. It was obviously PMS stuff. We learned to handle her a little more gently around that time, and sometimes I just pulled her into my classroom until she calmed down and was able to go back to her class. There are options.

Holly - Hi Pam, thank you for your thoughts. We stopped using her BIP in January because she’d had no incidents of aggressive behavior all year. What she’s doing now is completely new, so we’ll have to write the BIP from scratch and I’m going to push for consistent consequences as apposed to escalating consequences. It is very helpful to hear from teachers and get another point of view, so thank you very, very much for chiming in. <3
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These Are the Things You Don’t Want to Hear

So we saw Anna’s geneticist Tuesday morning. Really the only changes since the last time we were in three years ago is that Anna developed hypothyroidism, she has increased laxity in her joints, and her kyphoscoliosis is worse. There is an additional test we could run now if wanted, but it’s quite expensive… $7-9K at…

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Rebecca Spencer - Oh Holly my friend. Yes this is amazingly hard, far harder than anyone should have to deal with and these new challenges sound tough. But please remember how far you and Anna have come already, these years have not been easy and yet look at how wonderful Anna is. She is a beautiful young lady and I have every confidence that you will together, with the support and love from your family and friends, cope with these new challenges and the reality will be much better than what you are imagining right now. You are loved Holly and we believe in you, please remember that. Rebecca x
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Jesi Langdale - I just want to say that your daughter is beautiful and your love and respect for her is so so so very beautiful. I could never imagine the challenges you face and you are a wonderful mother. <3

Nina - I completely agree with, Rebecca. You have been through so much with sweet Anna, but yet you both continue to grow and thrive together. All these things you don’t want to hear — will only make you all stronger. :::hugs:::

Jill Cassara - Oh Holly, I’m just stumbling on all of this after checking out your Facebook page. You are so strong and such an inspiration. Big hugs.

Project 52 [Twenty-Twelve]: Week 48 ~ Thankful

The My Four Hens Project 52 theme this week is Thankful. This week I got to spend more time with my mom than usual and for that I am grateful. After school Anna has been going over to Nana’s house to play nearly every day. I followed her over one day and found her playing with Grayson,…

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“The Way I View,” A Clickin Moms 12-Month Challenge: October ~ Halloween

I’m participating in a fun 12-month challenge at Clickin Moms called “The Way I View.” Each month a group of 12 CM photographers interpret that month’s theme through photographs, then link to each other’s blogs. October’s theme is The Way I View: Halloween. I’m a week late in posting but I finally have some space to edit…

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Cary - That is one scary mask! Glad the kids were able to enjoy Halloween all together, hopefully everyone in on the mend from the round of sickness..hopefully it stays out of the way for the upcoming season!

“The Way I View”, A Clickin Moms 12-Month Challenge: September ~ Back to School

I’m participating in a fun 12-month challenge at Clickin Moms called “The Way I View”. Each month a group of 12 CM photographers interpret that month’s theme through photographs, then link to each other’s blogs. September’s theme is The Way I View: Back to School. For the first time EVER, Anna and Dominic have had a successful…

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Cary - That is fantastic Holly! Congrats to both of your kiddos for a great start to the new school year :)
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GrandPa Tim - What a great start – hoping all continues to go well for the kiddos !!! Love, Dad

Kim Lane - Oh Holly, I loved this. So encouraged to hear how well the school year is going, and you always capture your children so beautifully. I love Dominic’s look of concentration while studying and Anna’s pride at the Dino Award. So meaningful!!